Links and Reading List
Links and Reading List
Web Links
** Indicate resources recommended by CIDSO members.
National Organizations
- National Downs Syndrome Society
- National Association for Down Syndrome
- National Down Syndrome Congress
- National Organization on Disabilities
- Disability Support Group Finder
- Disability Resource on the Net
- The Arc of the United States
- National Down Syndrome Adoption Network
- Pacer Center: Champions for Children with Disabilities
- Disability Request Letter
State of Illinois- Mclean County
Down Syndrome Clinic- OSF Health Care Children's Hospital of Illinois - A collaboration with University of Illinois College of Medicine Peoria, the Down Syndrome Clinic is the only center of its kind in Illinois outside of Chicago.
McLean County Functional Needs Registry
Resource Roundup- the Division of Specialized Care for Children (DSCC) online resource directory and other helpful website content by category:
Medicare Advantage Plans in Illinois
UIC Division of Specialized Care for Children
Health
- COVID-19 and DOWN SYNDROME RESOURCE
- Medical Care of Adults with Down Syndrome: A Clinical Guideline
- Medicaid Long Term Care Eligibility Requirements Finder
- Eyesight and Down Syndrome
- **Lettercase.org - Lettercase is part of the National Center for Prenatal and Postnatal Resources and offers resources and support for medical providers and expectant parents first learning about a prenatal or postnatal diagnosis.
- Child Psychology Referral FAQ
- **Central Illinois Institute of Balance- CIIB Physical Therapy treats people suffering from pelvic pain and dysfunction, dizziness and balance issues, and recovering from a variety of injuries and surgeries.
- How Down Syndrome Affects Sleep
- Memory Care Information
- Assisted Living for Seniors with Disabilities
- Sleep Apnea and Down Syndrome
- Caring for the Eyes of Children with Developmental and Intellectual Disabilities
- How Do Disabilities Affect Oral Healthcare Outcomes?
Speech and Language
Speech and Language Therapy The Complete Resource Guide
Transition to Adulthood
Independence
- In Search of Independence Blog and Guidebook
- 50 Linked Resources to Support your Self Advocate's Independence Journey
Education
- Financial Resources and Discounts for Students With Disabilities
- What Students with Disabilities Should Know About Online Colleges
- Useful Apps for Kids with Dyslexia and Learning Disabilities
- How to Teach Children About Disabilities and Inclusion
- Measuring the Success of Early Intervention
- College Planning Guide for Students with Learning Disabilities
- Disabled Student Allowance (Supplemental Financial Support for College Students)
- Trades for People with Learning Disabilities
- Navigating College with Disabilities: An Essential Guide
Residential
- Tenants Rights and Housing Assistance for the Disabled
- Transition to Adulthood: Home Remodeling for Young Adults with Special Needs
- Special Needs Checklist: How Disability-Friendly is Your City?
- Rental Housing Rights for DisabledTenants
- Your Ultimate Guide to Mortgages and Home Loans for People with Disabilities
- Disaster Prep Guide for People with Disabilities
- Guide to Moving with Children with Disabilities
- Home Loans for People with Disabilites: Learn About Your Options!
- Assisted Living for Seniors with Disabilites
- Enhancing Accessibility:Key Home Modifications for Adults with Special Needs
Employment
- Career Guide for People with Disabilities
- Applying for a Job with a Disability or an Impairment
- Trades for People with Learning Disabilities- Best Trade Schools
- Job Assistance Guide for People with Disabilities
Financial
- Debt and Disability: Financial Recovery Resources for People with Disabilities (Also includes information on general financial resources)
- Financial Independence for Individuals with IDD
- Life Planning for Individuals with Disabilities: A Financial Planning Guide for Parents and Caregivers
- Resource for Social Security Disability Claimants and Their Families from DisabilityGuidance.org
Misc.
- Dads Appreciating Down Syndrome
- Sproutflix: Films Featuring People with DisabilitiesArtifi
- How to Make your Garden Safe and Fun for Disabled Children
- The Lucky Few Podcast Link: Shifting The Narrative by Shouting The Worth Of People with Down Syndrome.
- Artificial Intelligence and Assistive Technologies
- Delight Station - The first streaming service created with the IDD Community, for the IDD Community. Education, Entertainment and Inspiriation from their peers.
Caregiver
Print Resources
- A Parent’s Guide to Down Syndrome Toward a Brighter Future by Siegfried Pueschel
- Babies with Down Syndrome: A New Parents Guide, by Karen Stray- Gundersen
- Teaching the Infant with Down Syndrome, by Marci J. Hanson
- Communication Skills in Children with Down Syndrome by Libby Kumin
- Medical and Surgical Care for Children with Down Syndrome, by VanDyke, Mattheis, Eberly and Williams
- Count Us In: Growing Up With Down Syndrome, by Kingsley and Levitz
- Discover the Possibilities: A Curriculum for Teaching Parents about Integration, by Peak Parent Center
- Windows into Heaven by Stacy and Michelle Tetschner
- I just am by Bryan and Tom Lambke
- Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives by Kathryn Lynard Soper
- My Friend Isabelle by Eliza Woloson and Bryan Gough
- Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs by Donald Joseph Meyer and Cary Pillo