Links and Reading List
Links and Reading List
Web Links
** Indicate resources recommended by CIDSO members.
National Organizations
- National Downs Syndrome Society
- National Association for Down Syndrome
- National Down Syndrome Congress
- National Organization on Disabilities
- Disability Support Group Finder
- Disability Resource on the Net
- The Arc of the United States
- National Down Syndrome Adoption Network
- Pacer Center: Champions for Children with Disabilities
- Disability Request Letter
State of Illinois- Mclean County
McLean County Functional Needs Registry
Resource Roundup- the Division of Specialized Care for Children (DSCC) online resource directory and other helpful website content by category:
Medicare Advantage Plans in Illinois
UIC Division of Specialized Care for Children
Health
- COVID-19 and DOWN SYNDROME RESOURCE
- Medical Care of Adults with Down Syndrome: A Clinical Guideline
- Medicaid Long Term Care Eligibility Requirements Finder
- Eyesight and Down Syndrome
- **Lettercase.org - Lettercase is part of the National Center for Prenatal and Postnatal Resources and offers resources and support for medical providers and expectant parents first learning about a prenatal or postnatal diagnosis.
- Child Psychology Referral FAQ
- **Central Illinois Institute of Balance- CIIB Physical Therapy treats people suffering from pelvic pain and dysfunction, dizziness and balance issues, and recovering from a variety of injuries and surgeries.
- How Down Syndrome Affects Sleep
- Memory Care Information
- Assisted Living for Seniors with Disabilities
- Sleep Apnea and Down Syndrome
- Caring for the Eyes of Children with Developmental and Intellectual Disabilities
- How Do Disabilities Affect Oral Healthcare Outcomes?
Speech and Language
Speech and Language Therapy The Complete Resource Guide
Transition to Adulthood
Independence
- In Search of Independence Blog and Guidebook
- 50 Linked Resources to Support your Self Advocate's Independence Journey
Education
- Financial Resources and Discounts for Students With Disabilities
- What Students with Disabilities Should Know About Online Colleges
- Useful Apps for Kids with Dyslexia and Learning Disabilities
- How to Teach Children About Disabilities and Inclusion
- Measuring the Success of Early Intervention
- College Planning Guide for Students with Learning Disabilities
- Disabled Student Allowance (Supplemental Financial Support for College Students)
- Trades for People with Learning Disabilities
Residential
- Tenants Rights and Housing Assistance for the Disabled
- Transition to Adulthood: Home Remodeling for Young Adults with Special Needs
- Special Needs Checklist: How Disability-Friendly is Your City?
- Rental Housing Rights for DisabledTenants
- Your Ultimate Guide to Mortgages and Home Loans for People with Disabilities
- Disaster Prep Guide for People with Disabilities
- Guide to Moving with Children with Disabilities
- Home Loans for People with Disabilites: Learn About Your Options!
- Assisted Living for Seniors with Disabilites
- Enhancing Accessibility:Key Home Modifications for Adults with Special Needs
Employment
- Career Guide for People with Disabilities
- Applying for a Job with a Disability or an Impairment
- Trades for People with Learning Disabilities- Best Trade Schools
Respite
Financial
- Debt and Disability: Financial Recovery Resources for People with Disabilities (Also includes information on general financial resources)
- Financial Independence for Individuals with IDD
- Life Planning for Individuals with Disabilities: A Financial Planning Guide for Parents and Caregivers
- Resource for Social Security Disability Claimants and Their Families from DisabilityGuidance.org
Misc.
- Dads Appreciating Down Syndrome
- Sproutflix: Films Featuring People with DisabilitiesArtifi
- How to Make your Garden Safe and Fun for Disabled Children
- The Lucky Few Podcast Link: Shifting The Narrative by Shouting The Worth Of People with Down Syndrome.
- Artificial Intelligence and Assistive Technologies
Caregiver
Print Resources
- A Parent’s Guide to Down Syndrome Toward a Brighter Future by Siegfried Pueschel
- Babies with Down Syndrome: A New Parents Guide, by Karen Stray- Gundersen
- Teaching the Infant with Down Syndrome, by Marci J. Hanson
- Communication Skills in Children with Down Syndrome by Libby Kumin
- Medical and Surgical Care for Children with Down Syndrome, by VanDyke, Mattheis, Eberly and Williams
- Count Us In: Growing Up With Down Syndrome, by Kingsley and Levitz
- Discover the Possibilities: A Curriculum for Teaching Parents about Integration, by Peak Parent Center
- Windows into Heaven by Stacy and Michelle Tetschner
- I just am by Bryan and Tom Lambke
- Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives by Kathryn Lynard Soper
- My Friend Isabelle by Eliza Woloson and Bryan Gough
- Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs by Donald Joseph Meyer and Cary Pillo