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Only an estimated 5% of adults with Down syndrome in the U.S. have access to specialty Down syndrome clinics. That means 95% rely on their primary care professional.

Click above for link to website of resources for PCPs with patients with Down Syndrome

The McLean County Functional Needs Registry is a program set up to help individuals with special needs during an emergency situation. The program is a voluntary registration by county residents with functional needs to help local emergency responders during an emergency with planning and preparedness, so they know in advance who needs extra assistance. Click on link below for more information and to register.

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Intellectual and Developmental Disability Collaborative

Housed in the McLean County Health Department's Behavioral Health Program, IDDC is acollaborative system of care and development to better serve individuals with intellectual and developmental disabilities

 Contact:  iddc@mcleancountyil.gov

Down Syndrome: Guidelines for Inclusive Education is the first document of its kind in the United States. The document addresses the education settings that support students with Down syndrome, covering the period from early intervention and primary education through secondary and through higher education, with the primary focus being K-12 students.

Link to Guidelines

From: Family Matters at School

https://www.fmptic.org/sites/default/files/Spring%202022%20Final%20Newsletter.pdf

Sponsored by:

Down Syndrome Affiliates in Action, Exceptional Parenting Magazine, GiGi’s Playhouse, International Mosaic Down Syndrome Association, Jerome Lejeune Foundation, Matthew Foundation, T21 Research Society, Down Syndrome Association of Ontario

Covid-19 and Down Sydrome Resource PDF

A Clinical Guideline